Last Updated on February 26, 2016
'Dismaying’ figures released today show almost 50,000 people died with poor end of life care in last 12 months. The leading charities that produced the report warn the Government that end of life care is ‘on the brink’
In the last year, an estimated 48,000 people in England experienced poor care in the last three months of their life, a new report from a coalition of charities today warns. This represents 10% of people who died and is based on responses from relatives and carers collected by the Office of National Statistics (ONS).
On the Brink: The Future of End of Life Care highlights a range of widespread failures in care for dying people. It reveals that poor end of life care for come people means they are unable to get access to social care for help with everyday tasks such as washing and changing clothes, and many families are being left without professional advice on how to care for their dying relative. These factors can result in people being admitted to hospital as an emergency.
The report also includes distressing examples, such as badly co-ordinated nursing and care services leading to mix ups with pain medication, and a daughter struggling to arrange a home visit from a nurse for her dying mother.
The report says that a lack of support for people at home is putting extra pressure on an already overstretched NHS, with people dying in hospital spending an average of 13 days there. This means that people who die in hospital collectively could spend 2.9 million days in a hospital bed at the very end of their lives each year.
The report argues that shifting care out of hospitals will be better for people at the end of life and more cost-effective, but warns that the right support needs to be in place at home, and in other settings, to enable this to happen.
The charities, including the National Council for Palliative Care, Macmillan Cancer Support, Hospice UK, Sue Ryder, Marie Curie, Cicely Saunders International and Motor Neurone Disease Association, are urging the Government to adopt the recommendations of the landmark independent review of choice at the end of life, which was published a year ago today. Recommendations in the review include access to 24/7 community nursing and a record of a person’s preferences for care at the end of life.
Speaking on behalf the coalition of charities, Lynda Thomas, Chief Executive of Macmillan Cancer Support, said, 'This is an astonishing and dismaying number of people being without the care and support they deserve in their final days. No relative or carer should be left feeling that their loved one had experienced poor care at such an important and precious time. It is unacceptable that lasting memories are being tainted by pain being poorly managed.
'People at the end of life should be given choice over important issues such as where they spend their final days, and sadly we know that this isn’t always the case. Too often we hear of people being marooned in hospital, because they are not getting the right care at home. Nobody wants to see this happen as it is an appalling situation for the individual and puts strain on the health service.'
'A review of choice at the end of life was published last year which set out in detail what needs to be done to improve end of life care. The Government must now respond to this and commit to improvements in end of life care, without immediate action people will continue to die in distress.'
On The Brink: The Future of End of Life Care, is available on the End of Life Care Campaign website here.